'
I've been reading some of Gail Godwin's earlier novels as I prepare to review her new one in about a month for the
Plain Dealer. And the other day, I was reading
A Mother and Two Daughters, a novel set in North Carolina that begins with the death of the father of the eponymous two daughters. The rest of the novel chronicles their lives in the aftermath, revisits their earlier lives a bit, and concludes six years later with a huge family gathering out in the country.
Anyway ... late in the novel, the three women have gone to the seashore, where they visit their family cottage for the first time since the funeral. Through a series of odd events, the place burns down. And when she is returning home alone, Cate--the older sister--begins to experience some unusual physiological changes.
Feeling a sharp pain near her jaw, she figures she's having some sort of severe dental problem, but at the dentist's office, she hears this:
"... I'd say you'd be a good candidate for Bell's palsy."
"What's that?"
"Paralysis of the facial nerves. ... I'm going to arrange for you to see a neurologist. ... Whatever it is, the sooner we catch it, the more chance there is of a full recovery."
Full recovery?
"Am I having a stroke?" asked Cate (476).
Well, she subsequently learns that she
does have Bell's, and as the novel winds down, we learn that her case has been clearing up--though there are some lingering effects.
These passages hit me personally. For it was not all that long ago that I, too, had a surprise visit from Bell's palsy--a visit with lingering consequences. Here is a passage I wrote about my experience in my memoir
Schoolboy, available on Amazon/Kindle:
Fall 2003. Western
Reserve Academy. Hudson,
Ohio.
Men, for the most
part, are strange creatures, truly!
— Moliere, Tartuffe, 1.6
I’d
always intended to memorize “The Raven,” but I’d just never gotten around to
it. I knew others by Poe—“Eldorado,”
“Alone,” “To Helen,” “Annabel Lee.”
Still, whenever I taught Poe, I told my students about this “Raven”
ambition of mine. They seemed mildly
interested. Polite. One day I realized I was about to turn sixty
and still hadn’t learned the lines.
Didn’t look as if I would.
Then
in October, 2003, I was hit with the strangest damn thing. I came home from school one afternoon, my
mouth feeling dry. So I rinsed it out, but
when I tried to spit into the bathroom sink, water went everywhere. What the hell …? I looked in the mirror. The right side of my face appeared to be
sagging. I wasn’t sure what was
wrong. But I remembered I’d once had a
sinus infection that had caused a similar distortion. Perhaps another had arrived—though I didn’t feel
ill at all. Just some sharp soreness that
was declaring itself behind my right ear and along my right jaw line.
That
night Joyce and I went to the Ohio
Theatre in downtown Cleveland
to see a production of Tartuffe. During the show Joyce noticed that my right
eye was not blinking. She was
worried. But afterwards—we stayed for
all of it—I insisted on driving home.
(Sometimes I’m nothing if not a stereotypical, mulish American
man.) Still, privately, I was worried,
too. Why
can’t I blink? Every few seconds I had
to use a finger to hold my eyelid shut.
If I didn’t, the eyeball dried quickly.
And hurt.
At
home, Joyce wanted to take me to the
ER. I said it was probably just a sinus
infection. I’d wait till morning.
I
slept well. But I’m not sure how. Was my eye open all night? Or did I keep my hand on my eyelid the entire
time? In the morning my face was
worse. The entire right side would not
obey a single command. Frozen. Dead. While
I was showering (and wondering if I’d had a mild stroke), Joyce called our doctor. He quickly recognized the symptoms of Bell’s palsy—the
paralysis of the facial nerve. I’d never
heard of it. He told us it was not
dangerous but sent us to the ER. The
physician there confirmed the diagnosis, prescribed Prednisone and an
anti-viral. He told me that no one is really
sure what causes the condition (perhaps a virus?); there is no cure; it either
goes away or it doesn’t. It might take
weeks. Or months. It’s like some surreal malady out of a Poe
story, you know? (“The Man with the
Frozen Face”?)
The
short course of Prednisone—intended to relieve the swelling and perhaps allow
the facial nerve to function again—did nothing for my Bell’s.
But it did erase that Chilkoot-Pass pain in my left knee. So I canceled the arthroscopic surgery I’d scheduled.
(The pain has not returned.)
My
diary for those early weeks with Bell’s
shows my continuing attempts to keep up with my normal activities. Teaching.
Book-reviewing. And it was not
until a few days after my diagnosis that our family doctor told me I must keep
my right eye taped shut, all day, all night, every day.
This is not as easy as it sounds. I bought gauze eye patches, but underneath I had
to secure the eyelid with medical tape. But
the goddamn lid wanted to stay open, and if I didn’t tape it properly, it snapped
back up like a disobedient window shade, and I had to re-do it. I fussed with my eye many times per day.
We
went to see a neurologist in Akron,
a guy who didn’t seem too sure what to tell me.
He sent me to an ophthalmologist, who told me one of my options was to
sew my eyelid shut. I was getting frustrated. Angry.
No one seemed to know what to
tell me. Tape the eye? Don’t tape it? Use eye drops? Don’t use them? Sew the damn thing shut? In late October my diary was full of details
about the successful or unsuccessful tapings of my eye.
And
there were other nuisances. I could no
longer drive a car. And because my lips
were not cooperating with each other, I had to drink all liquids through a
straw—even hot coffee, my constant morning companion. Although I chewed mostly on the left side of
my mouth, food oozed out on the right and chunks of chewings end up caught between
my cheek and right jaw bone. Kissing Joyce became awkward. It was difficult to talk—my words beginning with
f- didn’t sound right. When I smiled, I looked freakish, and I
considered whether it might be better just to put on a Phantom mask and be done with it.
By
mid-November I realized I could not keep teaching. Using my single eye to survey my class, to
read papers, to keep up with the assignments—not to mention my book-reviewing. (Feeling all day like an effete Polyphêmos.) Talking remained difficult. And some of my students were so uncomfortable
with me that they avoided looking at me all period. This was not good. So I told the Academic Dean I was going to
have to go on leave until I started recovering.
Most of my students professed sadness and regret, though I’m sure many were
relieved that they didn’t have to look at my freaky face for a while.
Meanwhile,
Joyce’s online research found the Facial Nerve Center at the University of
Pittsburgh Medical Center, only about a hundred miles away. She called a specialist there, Dr. Ernest K.
Manders, who spoke with her at length.
He agreed to see me on 22 December.
He told me to fast the night before—just in case I elected to undergo a minor
surgical procedure.
Dr.
Manders, a wonderful man, was very encouraging.
He thought I would recover most if not all of my facial function. But it would take time—maybe months, maybe
more. He believed I was a good candidate
for an interesting surgery. He would insert
in my right eyelid a tiny gold weight that would permit me to blink properly,
would end my daily battles with medical tape.
He performed the operation late that very afternoon.
It
changed my life. Within a day—once I
removed the bandage, once the thick antiseptic ointment dissipated—I had both
eyes back. The world around me once
again broadened and deepened.
But
on our way home from the surgery, late in the evening, a mile or two from our
house, a deer leapt into the side of our car.
We did not see her at all before the impact—there was no Oh, there’s a deer! Look out!
Not until impact did we hear and feel her. Then
we saw her limp off into the woods. Like
that deer, our car would never again run just right. And neither would I.
While
I was recovering over Christmas vacation (now that I could use both eyes, I’d planned
to return to teach in mid-January), I received a playful email from Suneil, one
of my very fine students. He was
especially gifted in science and math (the other kids looked with awe upon him)
but had been doing very strong work in English as well. His email said something like this: I’ve learned about five stanzas of “The
Raven.” How many do you know?
Well, goddamn! I thought. I wrote back to
Suneil, told him I was going to start working on the poem, as well. I promised myself that I would memorize one
stanza per day until I’d learned all eighteen of them. I kept the promise. And on one of my first days back in class,
Suneil and I recited the poem, alternating verses. I made a couple of mistakes; he made
none. The students applauded. And Suneil and I had a history. The following year whenever I saw him on the
campus, there was a current between us. And
later, when Joyce and I visited the
Poe museum in Richmond,
I bought and sent Suneil a necktie adorned with little ravens.
As
I write this a few years later, I wonder: Why did Suneil do that? Start on “The
Raven”? Tell me about it? Did he know how I would respond? That I would join him in the pursuit of the
black bird? And did Suneil—that bright,
sensitive young man—somehow detect a way to heal me?
But
I have not recovered completely. I
performed the facial exercises the therapist prescribed; I took monthly trips
to Pittsburgh
for tests on my progress. Feeling and
animation gradually returned to my face.
But during one trip in May 2004 I found that I had made only two percent
improvement since the previous visit. I
was discouraged. I’d been working hard,
doing everything I was supposed to. But
I still had a total of just sixty-eight percent function. I had an appointment for early July. But, depressed, I canceled it; I have not
gone back.
Today, I would guess I’m
about at eighty to eighty-five percent.
It’s very unlikely that I will get any better. I’ve learned to live with it. To adapt.
People who’ve known me can see the difference, I’m sure, but people I’ve
just met probably think I’ve just got a wry smile, a lazy eyelid.